The Grace, Grief and Grit Podcast
Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey....more
Dee Daniels Media Podcast Network
All Episodes (15)
From new to old
From new to old
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3. A New Season: Lasting Legacy, Inspiring Impact!
Mar 26,2024 49:40 -
4. Kids Grief Support, ft. Child Life Specialist Jessica Correnti
Feb 22,2024 53:42 -
5. Savannah Ghost Pirates - EB Awareness Night is COMING!!
Feb 12,2024 11:23 -
6. Siblings of EB - The Faces and Hearts of True Support
Jan 18,2024 56:49 -
7. Meeting the Heroes Building Therapies for Genetic Diseases
Jan 11,2024 46:14 -
8. Perfection of Imperfection | ft. Hodges R. Caldwell, Jr.
Jan 04,2024 01:16:05 -
9. Wind to Fly Higher
Dec 14,2023 24:53 -
10. The Journey of Hope and Connection
Dec 07,2023 38:55 -
11. The Mom Episode
Oct 27,2023 55:24 -
12. The Dad Episode
Jun 07,2023 56:34 -
13. Once Upon a Ball with Cindy Brown
May 26,2023 31:31 -
14. The Day Hallie Grace Met Hallie Grace
May 22,2023 42:09 -
15. Hallie Grace’s Story: The Journey of Love, Hope, and Resilience
May 22,2023 55:34
The Grace, Grief and Grit Podcast
Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
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