Episode 52: Ode to Joy and what Narcolepsy REALLY looks like (with Charlene Barker)

TRANSCRIPT HERE 

What do Moulin Rouge, My Private Idaho, and cheesy comedies Deuce Bigalow and Rat Race have in common? Terrible depictions of Narcolepsy!

Today, Steph is joined by the fashionably creative and wonderful Charlene Barker, to discuss her real life experience of Narcolepsy with Cataplexy, and how it is depicted in the romantic comedy Ode To Joy, starring Martin Freeman. Charlene takes us through what life is like with Narcolepsy and if this film does it justice. Can’t be worse than Rowan Atkinson falling asleep mid jog can it??? (p.s. You can watch Ode to Joy here on youtube for $4)

Follow Charlene @charlenegirl and check out her amazing handmade jewelry @langlesandlings and vintage preloved clothing @volupture!

CONTENT WARNING: injury, car accident, nightmares, some ableist terms.

The Podcast episode the film was based on:

I've Fallen In Love and I Can't Get Up - This American Life

Project Sleep Resources connected to the film:

• Ode to Joy” PSA
• Ode to Joy: Resources | IFC Films
• Ode to Joy - Project Sleep (project-sleep.com)

Short Film “Walking Through Peanut Butter” which we also discuss:

Walking through Peanut Butter | Short Comedy - YouTube

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REFERENCES:

• Cataplexy: Causes, Symptoms, and Treatment | Sleep Foundation
• Narcolepsy - Treatment - NHS (www.nhs.uk)
• I have narcolepsy, and it's nothing like what you see in movies (mic.com)
• Narcolepsy is more than a Hollywood punchline, experts explain this mysterious condition - The Hollywood Digest
• \A Comedy of Errors: Ode to Joy's Inaccurate Portrayal of Narcolepsy with Cataplexy - Wake Up Narcolepsy
• - ‘Ode to Joy’ Filmmaker on Long Journey From Studio Rejection to Indie Release – The Hollywood Reporter
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