Joining us for the last episode of rare disease month is Keith McArthur. Keith is the co-founder and CEO of CureGRIN, a non profit rare disease organization. He is also a published author and he’s a fellow science podcaster, Unlocking Bryson’s Brain (one of our favorite podcasts!). But most importantly, Keith is the loving father of Bryson, who was diagnosed with a GRIN1 related disorder.
Keith McArthur got a second chance at life in 2017 when his little sister donated her kidney for transplant. Now, he writes and podcasts about his journey to becoming happier and healthier. Keith is the creator of My Instruction Manual — a website, podcast, and book series providing high-quality, personal-development content. Previously, Keith has worked as an award-winning journalist, a social media and public relations strategist, and a senior executive at one of Canada’s largest companies. He has written and edited several books, and serves as the president and publisher of FanReads Inc. His newest self-help book is Winning Resolutions: Achieve Your Biggest Goals and Wildest Dreams Once and For All. Keith’s previous book — 18 Steps to Own Your Life — was a silver medalist in the Non-Fiction-Motivational category of the 2018 Readers’ Favorite Awards.
On This Episode We Discuss:
GRIN1 mutations and GRIN1-related disorders
Bryson’s diagnostic odyssey
Connecting with other GRIN families
Keith’s motivation for starting CureGRIN
How the public interacts with individuals in the rare disease community
GRIN1 research in mice and the “Bryson” mouse
To learn more about GRIN1 research, check out GRIN Therapeutics, which focus entirely on developing potential treatments for the GRIN community. You can also head over to Homology Medicines, Inc that Keith mentioned during our recording.
Stay tuned for the next new episode of DNA Today on March 4th, 2022 with Fulgent Genetics about Pharmacogenomic testing! New episodes are released on Fridays. In the meantime, you can binge over 170 other episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Today”. Episodes since 2021 are also recorded with video which you can watch on our YouTube channel.
DNA Today is hosted and produced by Kira Dineen. Our social media lead is Corinne Merlino. Our video lead is Amanda Andreoli.
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